Muscle Help Foundation charity wins £5000 Movement for Good Award as part of Benefact Group’s Health & Wellbeing Special Draw

The Muscle Help Foundation charity has won a £5,000 Movement for Good Award from the Benefact Group thanks to nominations from the public. The charity was selected to receive a £5,000 donation as part of Benefact Group’s ‘Health & Wellbeing Special Draw. The ‘Movement for Good’ Award is giving over £1million to charities for the fifth year running.

Members of the public were invited to nominate a health and wellbeing charity to receive one of 10 special grants and winners, including The Muscle Help Foundation charity, were drawn at random.

Mark Hews, Group Chief Executive of Benefact Group, said:

“We would like to thank every single person who took the time to nominate a health charity as part of our Movement for Good Awards. Benefact Group is the third largest corporate donor in the UK and has an ambition to be the biggest. Owned by a charity, all of its available profits go to good causes, and the more the Group grows, the more the Group can give. We know that £5,000 can make a huge difference to the incredible work that health and wellbeing charities do and we’re looking forward to seeing how this financial boost will change lives for the better.”

[Movement for Good is funded by EIO plc, part of the Benefact Group]

The Benefact Group’s donation of £5000 will help contribute towards a mix of both virtual and in-person Muscle Dream experiences for young people like Amandeep, Alex, Izzy, Jimoh, Max, Sophie & James – you can read about their stories HERE

The donation will directly support the wellbeing of between approximately 15-20 beneficiaries, improving confidence and self-esteem but also giving an increased sense of hopefulness as well as establishing a powerful shared identity that connects vulnerable families together.

The charity’s Muscle Dream interventions give hope, but they also provide a much-needed platform to share knowledge, memories and establish lasting friendships. This donation will help the charity move a little closer to its overarching goal of delivering 657 Muscle Dreams, one for every muscle in the body. As of May ’23, the charity will have fulfilled 473 Muscle Dreams, leaving 184 to go!

Mark Hews, Group Chief Executive of Benefact Group, said:

“Last week, the charity invited its supporters, families, friends, donors, key partners, volunteers, suppliers, trustees and as I’ve now heard, so many others who’ve asked their own networks, friends and even schools to get involved, to invest just .20secs of everyone’s time to nominate our charity to receive £5000 in the Benefact Group’s Health & Wellbeing Special Draw. I am absolutely thrilled to say that we were one of the 10 chosen UK charities so to every single person who went online and voted, thank you, thank you, thank you!

Whilst a picture is worth a 1000 words, how about a video? If you went online and voted last week, the £5000 thank you video below is sent with gratitude and love from me to you! If you didn’t get the chance to vote and by asking, perhaps I’ve made you feel a teensy-weensy bit guilty, well maybe a little donation to the charity here will make you feel better. Either way, on behalf of the charity, thank you to every single person who nominated us – you’ve made a difference!”

Michael McGrath, added:

“Right now, every single penny counts, so if you would like to get involved by for example helping to tell our 657 story, or maybe your business might like to sponsor one of our upcoming Muscle Dream programmes, or perhaps your company is looking to adopt a small charity, get in touch and let’s have a conversation.”

ABOUT THE MOVEMENT FOR GOOD AWARDS

Benefact Group’s Movement for Good Awards is giving away over £1million to help charities change lives for the better.
150 £1,000 grants will be given away in June, a further 150 £1,000 grants will be donated in September, followed by 120 £1,000 grants which will be given away in December. £200,000 will also be given away in £5,000 special grants, and £500,000 will be given in larger grants of £10,000 or more later this year.
The £1,000 awards are open to all UK-registered charities. Anyone can nominate a registered charity at any time for the chance to receive £1,000.
Movement for Good is funded by EIO plc, part of the Benefact Group.
For more information visit movementforgood.com

ABOUT BENEFACT GROUP

Benefact Group is an independent, specialist financial services group that exists to give all its available profits to charity. Owned by a registered charity, Benefact Trust, Benefact Group’s family of businesses provide specialist insurance, investment management and broking and advisory services in the UK, Australia, Canada and Ireland.
Benefact Group is the third-largest corporate donor to charity in the UK, according to the UK Guide to Company Giving 2023/24. It has donated almost £200m to charity since 2014 and is aiming to reach its target of giving £250m by 2025. Find out more here: benefactgroup.com

ABOUT 2023 – MHF’S 20th ANNIVERSARY YEAR

2023 sees the charity reach a milestone, its 20th Anniversary – since 2003, it has touched the lives of 1000’s of people across the UK living with Muscular Dystrophy, from families and local communities to schools and businesses; today, its impact and reach continues to grow.

Plans for many other unique Muscle Dream experiences and programmes in the 2023 / 2024 period are shaping up – right now, with the cost of living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation, whatever you can give, whether £6.57 or £20.00 to mark MHF’s 20^th anniversary, all donations will be hugely appreciated – thank you.

To push on with its 657 mission, the charity is not only looking to establish new partnerships and collaborations but like many small charities, it desperately needs support in order to continue its important work – if you can help, please donate £20.00 or whatever you can give by clicking HERE – thank you.

GREAT PARTNERSHIPS START WITH A STORY – WILL YOU TELL OURS?

Part of this milestone anniversary year is a focus on storytelling, a powerful tool that can influence behaviours, change mindsets and move people to take action. We know that storytelling in today’s digital age is crucial – stories have to cut through which is why we have published several new beneficiary case studies, powerfully illustrating via personal insights, emotions and feelings why MHF’s work matters and how you can easily support our mission by helping to tell our story.

ABOUT THE CHARITY’S IMPACT

Uplifting, joyful and often cathartic in nature, MHF’s academically validated work and impact is rooted in the idea that well executed, shared experiences can be powerfully transformative in nature.

ABOUT MUSCULAR DYSTROPHY (MD)

Thanks to MHF’s friends at Muscular Dystrophy UK, research reveals that approximately 110,000 people (babies, children and adults) in the UK live with muscle-wasting conditions. Muscular Dystrophy is a progressive condition that gets worse over time. It is the single biggest genetic killer of children in the world today. It robs sufferers of their mobility, their independence and finally for those with the most severe type (Duchenne Muscular Dystrophy or DMD), their lives. Although there is some excellent research going on around the world, there is still currently no known treatment.

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE

Over the past 12-months, MHF’s tailored approach in operationalising bespoke virtual ‘person-centred’ Muscle Dream programmes continued to deliver positive outcomes for beneficiaries and families. The ‘lived experience’ of the charity’s CEO (Michael McGrath) who has Muscular Dystrophy (LGMD2A) and who is the driving force of the organisations work, provides both a unique, valuable and trusting influence on those for whom MHF exists to serve.

ABOUT MHF’S VULNERABLE BENEFICIARIES

Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.

THINK 657 – THE MORE UNUSUAL AND INTRIGUING, THE BETTER!

The more unusual and intriguing the connection to the number 657, the greater the opportunity to tell our charity’s story.”

(Source: Michael McGrath, CEO, Muscle Help Foundation)

WHAT’S YOUR 657 CHALLENGE?

We want you to think about the number 657 – the charity is on the lookout for all/any links to the number 657 and as such, we are keen to establish mutually beneficial collaborations ideally around the number 657. So, get in touch if you know of any 657 connections in your world or in your work ~ the more unusual, the more intriguing, the better!

Muscle Help Foundation charity launches 20th Anniversary Celebrations with .20 Second Video Invitation

The Muscle Help Foundation (MHF) has today launched its 20th Anniversary celebrations – the charity is officially 20 years old! MHF has been delivering its Muscle Dream activities across the UK for vulnerable children and young people (8-28yrs) living with Muscular Dystrophy (MD) for over two decades now, changing lives and giving much-needed hope.

Between now and the end of March 2024, the charity will be marking this milestone anniversary year by fulfilling even more Muscle Dreams whilst raising vital awareness of its work and impact. There are also a few surprises lined up and plenty of ways for people to get involved.

Some of the charity’s patrons and celebrity friends will also be lending their support in a very special way. Watch this space.

YOUR .20SECS VIDEO INVITATION

One of the ways people can get involved is by recording a .20 second video on their phone letting the charity know how it has made a difference to them and why people should support its work. The 20 best videos will be used throughout the year on its website and social channels to highlight the charity’s work and impact.

MAKING MUSCLE DREAMS A REALITY

MHF delivers a unique wish fulfilment model, tirelessly supporting the cherished dreams and aspirations of children and young people with muscular dystrophy and making those Muscle Dreams a reality – from taking the controls of an aircraft and experiencing level flight, driving around a racetrack in an iconic sports car, being out on the open water in an accessible powerboat, meeting a movie icon or sporting hero, or learning a new skill.

These transformational experiences are the charity’s core and tangible fulfilment device delivering both immediate and long-term positive impacts to the beneficiary and their family.

Michael McGrath (pictured below), CEO of the Muscle Help Foundation charity said:

“Our work doesn’t start and stop with an intervention – once a family becomes a beneficiary, by default they join our ‘Muscle Warrior’ tribe, a UK-wide community where experiences, achievements, challenges, and support are shared. We know that our beneficiaries value being part of this family-in-a-family community which also helps reduce isolation.

I am immensely proud that the charity has reached such an incredible milestone anniversary. Our vision over the past 20 years has become a powerful, restorative, life changing reality. Today, I am urging everyone that has supported the charity to join us as we celebrate 20 years of operation, 20 years of changing lives, 20 years of giving hope.

From the bottom of my heart, I would like to thank everyone who has been part of the journey to date. With your continued support, we will be able to push on with our vital work in supporting vulnerable families living with muscular dystrophy across the UK in making a positive and lasting impact on their lives.”

IMPROVING PHYSICAL & MENTAL HEALTH

Further substantiating MHF’s own robust quantitative and qualitative research, a 2021 report in the Journal of Child Health Care, suggests that such experiences improve physical and mental health, quality of life, social wellbeing, resilience and coping for children, parents and siblings.

ENDURING POSITIVE IMPACT
Wish fulfilment interventions can empower young people and their families, they can give young people a real sense of normality, they can generate positive emotions and they can create a sense of real hope for the future, in addition to providing validation for the young person’s illness. Plus, such interactions and activities can improve health-related quality of life and psychological wellbeing and can potentially have an enduring positive impact far beyond the immediate experience itself (Shoshani, et al., 2015; University of Sterling, 2015).

FULFILLING A YOUNG PERSON’S DREAMS AND ASPIRATIONS
The whole ethos of the charity is rooted in the idea that well executed experiences can fulfil a young person’s dreams and aspirations. Its entire charitable mission centres around a very important number – 657. The mission is simple. To deliver 657 transformational Muscle Dream interventions for children, young people and their families with muscular dystrophy across the UK, that’s one life-changing, cherished moment-in-time for every muscle in the human body.

As of May 2023, the charity will have delivered 473 Muscle Dream interventions with 184 to go to reach its overall 657 target. To deliver the remaining 184 experiences via a combination of both virtual and in-person activities will cost over £100,000.

During its 20-year history, the charity has not only helped 473 families with its Muscle Dreams, but through its online support activities, the sharing of research, and by continually communicating its work, it has reached 1000’s of families living with muscular dystrophy.

ABOUT 2023 – MHF’S 20th ANNIVERSARY YEAR:

Plans for many other unique Muscle Dream experiences and programmes in the 2023/24 period are shaping up – right now, with the cost of living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation, whatever you can give, whether £6.57 or £20.00 to mark the charity’s 20th anniversary, all donations will be hugely appreciated – thank you.

GREAT PARTNERSHIPS START WITH A STORY – WILL YOU TELL OURS?

Part of this milestone anniversary year is a focus on storytelling, a powerful tool that can influence behaviours, change mindsets and move people to take action. We know that storytelling in today’s digital age is crucial – stories have to cut through which is why we have published several new beneficiary case studies, powerfully illustrating via personal insights, emotions and feelings why MHF’s work matters and how you can easily support our mission by helping to tell our story.

ABOUT THE CHARITY’S IMPACT:

ABOUT MUSCULAR DYSTROPHY (MD):

Thanks to MHF’s friends at Muscular Dystrophy UK, new research reveals that approximately 110,000 people (babies, children and adults) in the UK live with muscle-wasting conditions. Muscular Dystrophy is a progressive condition that gets worse over time. It is the single biggest genetic killer of children in the world today. It robs sufferers of their mobility, their independence and finally for those with the most severe type (Duchenne Muscular Dystrophy or DMD), their lives. Although there is some excellent research going on around the world, there is still currently no known treatment.

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:

ABOUT MHF’S VULNERABLE BENEFICIARIES:

Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The vast majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.

THINK 657 – THE MORE UNUSUAL AND INTRIGUING, THE BETTER!

“The more unusual and intriguing the connection to the number 657, the greater the opportunity to tell our charity’s story” (Source: Michael McGrath, CEO, Muscle Help Foundation)

MHF is running a national campaign called The Power of 657 and its mission is simple – to deliver 657 transformational interventions for children, young people and their families with Muscular Dystrophy in the UK, that’s one life-changing experience for every muscle in the human body.

WHAT’S YOUR 657 CHALLENGE?

We would like you to think about the number 657 – the charity is on the lookout for all/any links to the number 657 and as such, we are keen to establish mutually beneficial collaborations ideally around 657. So, get in touch if you know of any connections in your world or in your work and remember, the more unusual, the more intriguing, the better!

For the charity’s beneficiaries, every Muscle Dream experience is an opportunity to not only realise their potential but also become a Muscle Warrior and by default, join the charity’s tribal Muscle Warrior community. For their family and friends, each one opens up a support network of like-minded individuals.

Muscle Help Foundation charity thrilled to announce its selection by Jeans for Genes Grant Programme with a core cost funding Award

The Muscle Help Foundation (MHF) charity wishes to express muscletastic thanks to Jeans for Genes UK for their recent award.

Thanks to kind donations, the 2022 Jeans for Genes Grant Programme awarded 21 charity partners with funding to help them provide vital support to individuals and families living with a genetic condition in the UK – from counselling, respite and peer support services to resources for the newly diagnosed and confidence building activity days, the Muscle Help Foundation charity is very grateful to have been selected as one of the chosen charities.

The MHF charity received confirmation of its Jeans for Genes Grant Award in March 2023. Jeans for Genes provided MHF with a grant to support core costs.

Michael McGrath, CEO of the Muscle Help Foundation charity said:

“On behalf of the Muscle Help Foundation charity, please accept this as an official acknowledgement of your kind donation towards core costs – thank you from the bottom of our hearts. The past few years have been extremely challenging and now with the cost-of-living crisis including escalating energy and food costs, our vulnerable community are, in 2023, once again having to face significant adversities which is why we are so grateful for your support at this time.

We work hard to promote inclusion through our programmes that also provide a level of psychosocial support, meaning we deliver our interventions in a safe and supportive way to vulnerable children and young people – a key part of this delivery is around engendering trust with parents, guardians, and carers. The lasting impact on mental health and wellbeing, self-esteem, confidence, and the restoration of hope for our beneficiaries, their families and wider communities is profound.

We work hard to change lives and give hope through our transformational interventions designed for children and young people (8-28yrs) with the muscle wasting disease muscular dystrophy. Our efforts offer powerful shared experiences that stimulate a sense of belonging, moments-in-time that connect families, giving a vital platform to share knowledge, memories and establish lasting friendships.

Our impact continues to be felt by beneficiaries and families – the Jeans for Genes grant will help the charity move a little closer to its overarching goal of delivering 657 Muscle Dreams, that’s one for every muscle in the human body!”

ABOUT JEANS FOR GENES

The Jeans for Genes campaign raises awareness of the daily challenges faced by those living with a genetic condition and raises money to fund projects that make a tangible difference to the lives of those affected.

Most importantly, the campaign:

Brings together the genetic condition community in order to make a loud noise about the issues that matter to them
Shines a light on the organisations that work tirelessly to improve the lives of affected individuals
Celebrates the achievements of those living with a genetic condition

Please take a look at their Funding in Action information page to learn more about the lasting impact that your Jeans for Genes donations make – thank you!

For more info, head to: www.jeansforgenes.org

Facebook: www.facebook.com/JeansforGenesUK

Twitter: www.twitter.com/JeansforGenes

Instagram: www.instagram.com/jeans_for_genes

YouTube: www.youtube.com/channel/UChUIp7xnLfBcNKTTjHdypfQ

ABOUT 2023 – MHF’S 20th ANNIVERSARY YEAR:

Plans for many other unique Muscle Dream experiences and programmes in the 2023/24 period are shaping up – right now, with the cost of living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation, whatever you can give, whether £6.57 or £20.00 to mark the charity’s 20th anniversary, all donations will be hugely appreciated – thank you.

To push on with its 657 mission, the charity is not only looking to establish new partnerships and collaborations but like many small charities, it desperately needs support in order to continue its important work – if you can help, please donate £20.00 or whatever you can give by clicking HERE – thank you.

GREAT PARTNERSHIPS START WITH A STORY – WILL YOU TELL OURS?

Part of this milestone anniversary year is a focus on storytelling, a powerful tool that can influence behaviours, change mindsets and move people to take action. We know that storytelling in today’s digital age is crucial – stories have to cut through which is why we have published several new beneficiary case studies, powerfully illustrating via personal insights, emotions and feelings why MHF’s work matters and how you can easily support our mission by helping to tell our story.

ABOUT THE CHARITY’S IMPACT:

ABOUT MUSCULAR DYSTROPHY (MD):

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:

ABOUT MHF’S VULNERABLE BENEFICIARIES:

THINK 657 – THE MORE UNUSUAL AND INTRIGUING, THE BETTER!

“The more unusual and intriguing the connection to the number 657, the greater the opportunity to tell our charity’s story” (Source: Michael McGrath, CEO, Muscle Help Foundation)

WHAT’S YOUR 657 CHALLENGE?

Moved by positive impact charity has on beneficiaries and their families, Miriam Margolyes OBE confirms her support of Muscle Help Foundation

The Muscle Help Foundation (MHF) is thrilled to announce that British-Australian actress, writer, political activist and TV personality Miriam Margolyes OBE has agreed to lend her support to our charity.

Miriam Margolyes OBE, pictured below said:

“The Muscle Help Foundation charity creates unique wish fulfilment experiences for those living with Muscular Dystrophy (MD). Now dreams can come true that were out of reach before. That’s a powerful achievement.

I am honoured to have the opportunity to help those living with MD and I’m proud to support this charity and raise awareness of its work. It moves me when I read some of the beneficiary stories and hear about the magic and joy that these Muscle Dream experiences have brought to so many families across the UK.

This may be a small charity, but the impact it makes is huge and lasting!”

Photograph Credit ~ Jennifer Robertson

MHF’s founder & CEO Michael McGrath said:

“I recall watching the three-part travelogue documentary series ‘Australia Unmasked’ with Miriam Margolyes last year – episode 3 in early August resonated in a profound way, making me sit up in my powerchair! Miriam was in South Australia looking at whether elderly and disabled Australians are being left behind. Using a walking stick and a mobility scooter to more easily get around, I was drawn into a mindset, a conversation, a force-of-nature personality that by default made me reflect on the vulnerabilities and daily battles of our charity’s vulnerable community across the UK.

Most (96%) of the Muscle Help Foundation’s beneficiaries, are boys and young adults living with the most severe form of Muscular Dystrophy (MD) known as Duchenne Muscular Dystrophy (DMD) – affecting approximately 1 in 3,500 new-born boys, DMD is life-limiting. As I watched episode 3, I was deeply touched in how Miriam spoke about and interacted with Tyler, a 10-year-old DMD boy and his mum Amanda.

Over the past 20 years, I’ve personally met hundreds of young people with DMD, I’ve spoken with countless mums, dads, brothers and sisters, uncles and aunties, PA’s and carers and it’s clear to me that if there is a strong support system in place underpinned by unconditional love, the life-journey of someone with DMD can be a fulfilling and happy one – those joyful, life-affirming moments-in-time that are so enabling, empowering and memorable, like Tyler at Henley Beach with a lifeguard, in the warm water, in a beach wheelchair, with his mum Amanda and also Miriam, with waves lapping around them all, these are the magical experiences that enrich, that will be spoken about and reflected on by Tyler and his mum in the years to come.

There’s a distinct correlation that exists between family advocacy and having a reasonable quality of life – right now, in the UK, as a consequence of the pandemic and now the cost-of-living crisis, I am deeply concerned about how many families are going to manage and with these additional pressures, there’s an inevitability about diminishing mental wellness and feelings of being isolated.

Following episode 3, which I’ve watched at least four times, I decided that in garnering much-needed support, we should reach out to Miriam to explore whether she might like to lend her advocacy to our small charity – her unique characteristics, her creative, intuitive, impulsive traits combined with an optimism that’s rooted in possibilities and opportunities, it’s these attributes that I hope will help strengthen the resolve of our Muscle Warrior tribe during these difficult times. It goes without saying that we were thrilled when she said ‘yes’ … bring on Miriam!”

ABOUT 2023 – THE 20th ANNIVERSARY YEAR:

Plans for many other unique Muscle Dream experiences and programmes in the 2023/24 period are shaping up – right now, with the cost of living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation, whatever you can give, whether £6.57 or £20.00 to mark the charity’s 20th anniversary, all donations will be hugely appreciated – thank you.

GREAT PARTNERSHIPS START WITH A STORY – WILL YOU TELL OURS?

Part of this milestone anniversary year is a focus on storytelling, a powerful tool that can influence behaviours, change mindsets and move people to take action. We know that storytelling in today’s digital age is crucial – stories have to cut through which is why we have published several new beneficiary case studies, powerfully illustrating via personal insights, emotions and feelings why MHF’s work matters and how you can easily support our mission by helping to tell our story.

ABOUT THE CHARITY’S IMPACT:

ABOUT MUSCULAR DYSTROPHY (MD):

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:

Over the past 12-months, MHF’s tailored approach in operationalising bespoke virtual ‘person-centred’ Muscle Dream programmes continued to deliver positive outcomes for beneficiaries and families. The ‘lived experience’ of the charity’s CEO (Michael McGrath) who has Muscular Dystrophy (LGMD2A) and who is the driving force of the organisations work, provides both a unique, valuable and trusting influence on those for whom MHF exists to serve.

ABOUT MHF’S VULNERABLE BENEFICIARIES:

Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The vast majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.

THINK 657 – THE MORE UNUSUAL, THE BETTER!

MHF is running a national campaign called The Power of 657 and its mission is simple – to deliver 657 transformational interventions for children, young people and their families with Muscular Dystrophy in the UK. That’s one life-changing experience for every muscle in the human body. We would like you to think about the number 657 – we are keen to establish mutually beneficial collaborations ideally around 657. So, get in touch if you know of any connections in your world or in your work, the more unusual, the better!

Muscle Warriors Head To Home of England Rugby At Twickenham Stadium To Watch England Squad Defeat Italy

Pushing on with its 657 Muscle Dream mission, the Muscle Help Foundation (MHF) charity arranged for a further four beneficiaries, all rugby fanatics, to mix it up with 82,000 other spectators at Twickenham Stadium, the home of England Rugby, in witnessing England’s victory over Italy in the Guinness Six Nations match on Saturday 12th February 2023.

Thanks once again to a successful RFU Charity ballot submission made in Oct 2022, four Muscle Warrior families headed to Twickenham Stadium for a sporting experience of a lifetime! George (from Hampshire) for whom this was a special birthday treat, plus Matthew (from Surrey), Samuel (from Bristol) and Jack (from the West Midlands) were accompanied by mums and dads. Everyone had a truly amazing time as you can see from the short video and some of their feedback below.

Muscle Warrior Jack’s mum Emma said:

“Firstly, I would like to thank you again for the amazing opportunity that you gave Jack yesterday to watch England v Italy at Twickenham Stadium. He had the most amazing time and loved every minute of it. This was an incredible experience for him, from the atmosphere of being in the ground, the friendliness of people and the great view from the seats, all of this I know he will cherish for a long time. Thank you so much for making this happen for him, we truly appreciate it”

Muscle Warrior George said:

“It was my first time at Twickenham, and I was blown away by the size and the numbers of supporters there. England played brilliantly and by half-time hadn’t let Italy score at all with a 19-0 lead. Italy fought back hard in the second half, but England kept their cool and managed to beat them 31-14 by full time. I absolutely loved the roar of the crowd and the pyrotechnics when England scored! The atmosphere was buzzing! It was a lovely surprise for my 15th birthday next week – thank you to the Muscle Help Foundation charity for an amazing day”

George’s mum Nicola said:

“Thanks so much again for providing this experience for him. George had a truly memorable day. He apologies for not being able to do the Muscle Warrior salute – his arms are too weak now – his dad did it on his behalf”

Kathryn (Muscle Warrior Matthew’s mum) said:

“Matthew had an amazing time and having been ill for three weeks at home it was the most perfectly timed gift. He is wearing the shirt he bought with your merchandise allowance. He picked it so that he can wear it at matches and away from them. It was great to see England win again! Sadly, there is no Muscle Warrior salute as Matthew doesn’t have the arm function to do that but in his heart, he is giving one to everyone! Thank you so much again!”

Muscle Warrior Samuel & his mum Samantha said:

“Hello, I just wanted to say thank you so much for the amazing experience of watching Six Nations England vs Italy at Twickenham. Both myself and my mum thoroughly enjoyed it!!!”

Providing Muscle Dream experiences like this to our beneficiaries is what the charity is all about. It is our charitable mission to make moments-in-time like the above that might perhaps feel out of reach, a reality.

Plans were put in place and arrangements made to ensure that everyone had a magical and memorable time – to help with the cost-of-living crisis, specifically fuel and food, the charity contributed towards beneficiary families travel and subsistence costs. Additionally, the charity provided an allowance of £50.00 to each beneficiary and their accompanying companion/PA/carer used inside the famous RFU Rugby Store onsite at Twickenham Stadium to buy rugby merchandise.

As we know only too well, there are always bonuses along the way, things that happen that are not necessarily a part of the Muscle Dream programme plan – as you can see below, Jack (pictured below) got the opportunity to meet former rugby player and I’m A Celebrity 2022 contestant, Mike Tindall MBE, who played outside centre for Bath and Gloucester, winning 75 caps for England between 2000 and 2011. He not only had the honour of captaining England, but he was also a member of the 2003 World Cup winning squad.

ABOUT 2023 – THE 20th ANNIVERSARY YEAR:

Plans for many other unique Muscle Dream experiences and programmes in the 2023/24 period are shaping up – right now, with the cost of living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation, whatever you can give, whether £6.57 or £20.00 to mark the charity’s 20th anniversary, all donations will be hugely appreciated – thank you.

To push on with its 657 mission, the charity is not only looking to establish new partnerships and collaborations but like many small charities, it desperately needs support in order to continue its important work – if you can help, please donate £20.00 or whatever you can give by clicking HERE – thank you.

ABOUT MHF’S VULNERABLE BENEFICIARIES:

Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The vast majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.

ABOUT MUSCULAR DYSTROPHY (MD):

Thanks to MHF’s friends at Muscular Dystrophy UK, new research reveals that approximately 110,000 people (babies, children and adults) in the UK live with muscle-wasting conditions. Muscular Dystrophy is a progressive condition that gets worse over time. It is the single biggest genetic killer of children in the world today. It robs sufferers of their mobility, their independence and finally for those with the most severe type (Duchenne Muscular Dystrophy or DMD), their lives. Although there is some excellent research going on around the world, there is still currently no known treatment.

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:

Over the past 12-months, MHF’s tailored approach in operationalising bespoke virtual ‘person-centred’ Muscle Dream programmes continued to deliver positive outcomes for beneficiaries and families. The ‘lived experience’ of the charity’s CEO (Michael McGrath) who has Muscular Dystrophy (LGMD2A) and who is the driving force of the organisations work, provides both a unique, valuable and trusting influence on those for whom MHF exists to serve.

THINK 657 – THE MORE UNUSUAL, THE BETTER!

MHF is running a national campaign called The Power of 657 and its mission is simple – to deliver 657 transformational interventions for children, young people and their families with Muscular Dystrophy in the UK, that’s one life-changing experience for every muscle in the human body. We would like you to think about the number 657 – the charity is on the lookout for links to the number 657 and as such, we are keen to establish mutually beneficial collaborations ideally around 657. So, get in touch if you know of any connections in your world or in your work, the more unusual, the better!

For the charity’s beneficiaries, every Muscle Dream experience is an opportunity to not only realise their potential but also become a Muscle Warrior and by default, join the charity’s tribal community. For their family and friends, each one opens up a support network of like-minded individuals.

ABOUT THE CHARITY’S IMPACT:

Uplifting, joyful and often cathartic in nature, MHF’s academically validated work and impact is rooted in the idea that well executed, shared experiences can be powerfully transformative in nature.

First of its kind corporate partnership between MHF charity and Ares Management Corporation announced

The Muscle Help Foundation (MHF) charity is delighted to announce an exciting corporate partnership with Ares Management Corporation, and it’s a first for a UK charity!

Ares Management Corporation is an American global alternative investment manager operating in the credit, private equity and real estate markets. Ares has provided funding to the charity to support its vital work in delivering transformational wish-fulfilment interventions to children and young adults living with Muscular Dystrophy.

The company supports charitable causes that work hard to address systemic challenges through transformative giving intended to improve individuals’ quality of life. This charitable work is made possible through the generosity of individuals and Ares Management Corporation, which donates a portion of profits from select funds to its own Foundation to align the firm’s investment activities with its societal impact.

MHF’s CEO and founder Michael McGrath said:

“On behalf of the Muscle Help Foundation we are delighted to have been selected as the first charity in the UK to partner with Ares Management Corporation. Through this very special collaboration, Ares has supported us with a generous donation of $25,000 as well as directly supporting MHF’s ongoing work, specifically in contributing towards the charity’s mission of delivering 657 Muscle Dream interventions in the UK for children and young people with Muscular Dystrophy.

It’s my hope that MHF will deliver its purpose at what is an uncertain and challenging time for many, not least our vulnerable community. I am looking forward to not only working closely with Ares in amplifying the mission, but also seeing the positive and potentially game-changing impact that can come from corporate relationships where there is an alignment of values and where common goals exist to do good. As we say, that’s the #powerof657!’

Muscle Dreams are once in a lifetime interventions, moments-in-time or experiences delivered in the UK for children and young people (8-28yrs) living with Muscular Dystrophy. Over the years, experiences have included beneficiaries taking the controls of an aircraft and experiencing the freedom of level flight, enjoying the thrill of a passenger ride in a high-performance racing car like a Porsche 911 Turbo S, learning a new skill to interviewing a movie icon or meeting a sporting hero – click here to see some of the charity’s videos on our YouTube channel. The number 657 is significant because it represents one life-changing experience or a moment in time, be it in-person or virtual, for every muscle in the human body and the charity is determined to deliver on this 657 mission.

It has never been more important for the MHF charity to deliver its work and activities at what is an uncertain and challenging time for many – the ongoing impact as a direct result of the cost of living crisis is yet another adversity that MHF’s vulnerable community must face.

LET’S HAVE A CONVERSATION:

If you or your organisation is interested in talking to us about corporate partnerships or have any recommendations of organisations looking to make a difference for a worthy cause, please either get in touch here or email < ceo(@)musclehelp(dot)com > and let’s have a conversation.

ABOUT THE MUSCLE HELP FOUNDATION (MHF) CHARITY:

MHF organises and facilitates highly personalised events, experiences, and activities, which they refer to as Muscle Dreams, for children and young people with Muscular Dystrophy or related muscle-wasting conditions and their families.

The charity’s vulnerable community remain at the forefront of its work – the impact of the global pandemic was significant, not least on their mental wellbeing. Now with the escalating costs of food and energy, our beneficiaries and their families are having to dig even deeper in finding ways to keep warm, nourished and well. Now more than ever, MHF’s work is needed – this is evidenced by the increasing number of nominations but also requests from outside the UK for help and support.

ABOUT MHF’S VULNERABLE BENEFICIARIES:

Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The vast majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.

ABOUT MUSCULAR DYSTROPHY (MD):

ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:

Over the past 12-months, MHF’s tailored approach in operationalising bespoke virtual ‘person-centred’ Muscle Dream programmes continued to deliver positive outcomes for beneficiaries and families. The ‘lived experience’ of the charity’s CEO (Michael McGrath) who has Muscular Dystrophy (LGMD2A) and who is the driving force of the organisations work, provides both a unique, valuable and trusting influence on those for whom MHF exists to serve.

THINK 657 – THE MORE UNUSUAL, THE BETTER!

MHF is running a national campaign called The Power of 657 and its mission is simple – to deliver 657 transformational interventions for children, young people and their families with Muscular Dystrophy in the UK, that’s one life-changing experience for every muscle in the human body. We would like you to think about the number 657 – the charity is on the lookout for links to the number 657 and as such, we are keen to establish mutually beneficial collaborations ideally around 657. So, get in touch if you know of any connections in your world or in your work, the more unusual, the better!

For the charity’s beneficiaries, every Muscle Dream experience is an opportunity to not only realise their potential but also become a Muscle Warrior and by default, join the charity’s tribal community. For their family and friends, each one opens up a support network of like-minded individuals.

By mid-Feb 2023, it is anticipated that the charity will have fulfilled 462 Muscle Dreams, leaving 195 to go in reaching the overall target of 657.

ABOUT THE CHARITY’S IMPACT:

ABOUT 2023 – THE 20th ANNIVERSARY YEAR – PLEASE DONATE £20.00

10th Anniversary Porsche Programme Sees 10 Muscular Dystrophy Petrol-Heads Rock Silverstone With A Once-In-A-Lifetime Driving Experience

Last month (Sept 2022), the Muscle Help Foundation (MHF) charity gave ten lucky beneficiaries the experience of a lifetime at a unique Porsche driving experience event at Silverstone, the home of British motorsport. After three long and challenging years due to the pandemic, the charity’s signature Porsche Muscle Dreams Driving Experience Programme finally returned to mark the 10th Anniversary of its flagship event.

Ten beneficiaries living with Muscular Dystrophy (MD) took to the tracks in a Porsche 9-11 at Silverstone to experience the thrill of a ride around the iconic Grand Prix Circuit as well as Porsche’s own racetrack of nearly 5km including their handling circuit, the straights, the kick plate and the ice hill.

MHF’s CEO Michael McGrath said:

“Seeing the happiness on everyone’s faces as they zoomed around the track was just priceless. It’s why we do what we do. For every beneficiary and their family this is about empowerment, increasing confidence, bringing vulnerable families together and ultimately creating cherished memories that last a lifetime.

“I know that so many families are desperately worried about the increasing costs of living, the energy crisis and their ability to pay bills as well as ongoing inflationary pressures, meaning there’s even more uncertainty in addition to the ongoing impacts of the COVID-19 pandemic – I’m really concerned that many of our already very vulnerable families will face additional social isolation, more stress, more financial pressures, not least diminishing mental health and emotional wellbeing, more so now than ever before. Being able to offer some temporary respite from those day-to-day worries through our transformational work and moments-in-time like the charity’s unique Porsche programme, has never been more important”

What some of this year’s Class of 2022 beneficiaries and their families said:

Toni Charlick from Gravesend, Kent, mother to Adam (17yrs, pictured below) who took part in the programme, said:

“Adam has always loved cars; it is his biggest passion, so to have this opportunity was amazing! Families living with MD must miss out on so many things because of accessibility etc so the work of the Muscle Help Foundation charity is incredibly important to us and all families living with MD. The event was fantastic. Adam was smiling from ear to ear the whole day. He is keen to pursue a career in car engineering and design and this has inspired him to further pursue that dream. This experience has had a hugely positive impact upon his mental health and how he views life”

Adam (pictured below) said:

“My ultimate dream is to work with cars and I’m currently studying for my BTEC engineering at sixth form so I can achieve this. I just love being in or around cars, especially fast ones. I am determined not to let Duchenne Muscular Dystrophy stop me achieving my dreams”

Another family that took part in the programme are from Ukraine. They are currently living in the UK with a sponsor family after fleeing the country due to the war.

Marharyta Yashchenko, mother to Danyil (15yrs, pictured below) with Duchenne Muscular Dystrophy (DMD), said:

“It’s been a difficult time for us having relocated here this year due to the war so when we got this opportunity, we were so excited and emotional. My son is very fond of cars, as are many boys. Being in a fast car allowed him to realise his dreams.

“Very often, people with disabilities are embarrassed about their condition and lead a secluded lifestyle. This usually leads to disease progression and physical deterioration. Such support like this, from charities like The Muscle Help Foundation, provide an opportunity for people with Duchenne to be themselves, to be in society, to get new acquaintances, expand their horizons, and get new experiences. In Danyil’s words he said, ‘the Porsche is a machine for the soul’!

The event was supported by the charity’s key partners, namely the Porsche Experience Centre at Silverstone and Whittlebury Park, near Towcester. The first Porsche Muscle Dreams Programme took place in May 2011.

A mini army of incredibly devoted MHF Volunteer Hosts (pictured below) from all walks of life have over the years selflessly given up their time to ensure that beneficiaries and their families have the most magical experience of their lives.

Jake Hudson (28yrs, pictured below) from Crewe, Cheshire, also with Duchenne Muscular Dystrophy (DMD) said:

“This opportunity was really special to me and my family as we have always loved cars. To actually be in a Porsche is something of a dream, one that I never thought was possible. Having access to wish-fulfilment experiences like this is very important in my opinion – it can be difficult to accept MD and it can be all too easy to believe an active life is not possible, but that’s not the case. This experience has definitely enhanced my self-belief, confidence, and my can-do attitude.

“Overall, it was just awesome. The adrenaline was pumping and as we went faster, my smile got bigger. It was emotional too though – knowing this is a once in a lifetime moment which I will cherish forever! My disability was left at the front door. The whole experience empowers you to just be yourself”

Vanessa Hagg from Norfolk, Mum to Will (13yrs, pictured below) said:

“Will wants to go again; it has ignited his passion for cars even further and he’s determined he will drive his own car one day. He’s also asked if I can buy a convertible car so I can take him for drives along the coast – it will not be a Porsche though!”

Gill Kerr, Manager, Porsche Experience Centre Silverstone said:

“Sharing the excitement of Porsche is core to what we do at the Porsche Experience Centre Silverstone. But sharing that excitement with the Muscle Warriors and their families is particularly special. 2022 marked the 10th anniversary of Porsche’s partnership with Muscle Dreams and we’re delighted to have helped realise the dreams of the very deserving beneficiaries over those 10 years in support of this transformational charity”

Charles Sargeant, Managing Director, Whittlebury Park said:

“The Muscle Help Foundation charity is a fantastic cause, and we were delighted to welcome the Muscle Warriors back to Whittlebury Park to help fulfil some of their wishes. Being a car enthusiast myself, nothing makes me happier than seeing the enjoyment we are able to give to others by sharing our passion”

David Munson, General Manager, Whittlebury Park added:

“It was amazing for us to welcome back the Muscle Help Foundation for their 10th Anniversary of the Porsche programme at Whittlebury Park this year. Having seen what the charity has accomplished in the last decade and making the dreams of so many young people a reality, it really is a delight and privilege to continue to be a partner for such an amazing charity and for such a fantastic event.

Seeing the smiles on the faces of the 10 Muscle Warrior beneficiaries as they returned from Silverstone this year was truly wonderful – I’m sure we’ll see many more in the future. We look forward to being part of the journey in helping the charity achieve its 657 mission”

How you can support our small charity:

The Muscle Help Foundation (MHF) organises and facilitates highly personalised events, experiences, and activities, which they refer to as Muscle Dreams, for young people with Muscular Dystrophy or related muscle-wasting conditions and their families.

Thanks to Muscular Dystrophy UK, new research reveals that approximately 110,000 people (babies, children and adults) in the UK live with muscle-wasting conditions. Muscular Dystrophy is a progressive condition that gets worse over time. It is the single biggest genetic killer of children in the world today. It robs sufferers of their mobility, their independence and finally for those with the most severe type (Duchenne Muscular Dystrophy or DMD), their lives. Although there is some excellent research going on around the world, there is still currently no known treatment.

The Power of 657:

The MHF charity is running a national campaign called The Power of 657 and its mission is simple – to deliver 657 transformational wish fulfilment experiences for children, young people and their families with Muscular Dystrophy in the UK, that’s one life-changing experience for every muscle in the human body.

For the charity’s beneficiaries, every Muscle Dream experience is an opportunity to not only realise their potential but also become a Muscle Warrior and by default, join the charity’s tribal community. For their family and friends, each one opens up a support network of like-minded individuals.

To date, the charity has delivered 436 Muscle Dream interventions with 221 to go to reach the overall target of 657.

Uplifting, joyful and often cathartic in nature:

MHF is a small charity delivering highly personalised, transformational interventions in the UK called Muscle Dreams for children and young adults (8-28yrs) with the muscle wasting condition, Muscular Dystrophy (MD).

2023 is MHF’s 20th Anniversary:

Next year, 2023 will see the charity reach its 20th anniversary – since 2003, it has touched the lives of 1000’s of people across the UK living with Muscular Dystrophy, from families and local communities to schools and businesses – its impact and reach continues to grow.

For MHF to continue its vital work and push on with its 657 mission, the charity desperately needs support – if you can, please donate by clicking HERE – thank you.

“Welcome to your Club!” Lifelong Tottenham Hotspur Fan Azeem’s Awesome Muscle Dream with Spurs First Team Squad

Some might say that nearly 4 years is a long time from receipt of a Muscle Dream nomination to fulfilment but that’s pretty much exactly how long it took (give or take 3 months) to deliver what was the Muscle Help Foundation (MHF) charity’s 436 Muscle Dream for 22yr-old Azeem from Leyton, East London and what a memorable experience it was!

The human spirit is a wonderful thing and whilst the journey is sometimes filled with family hardships, real life circumstances that derail even the best laid plans and adversities that come from a global pandemic, MHF together with support from the Lord-Lieutenant of Hertfordshire finally delivered on the promise – patience is indeed a virtue!

“These moments are priceless – the look on my beautiful son’s face was wonderful for me, his father, to see. The day was one of the best days of my life seeing my son Azeem filled with pure joy and happiness” (Source: Imran Ali, Azeem’s father)

Nov 2018 – Azeem’s original nomination was received by the charity from his mum Shazia in Nov 2018 and as MHF discovered, pandemic aside, special VIP visits such as this are extremely rare. Azeem has an extremely rare X-linked genetic progressive variant of Muscular Dystrophy known as Pelizaeus-Merzbacher disease (PMD), a degenerative central nervous system disorder in which coordination, motor abilities, and intellectual function deteriorate.

Sept 2019 – nearly a year later, a date in Sept 2019 was suggested but it soon became apparent that Azeem’s sister, who has severe scoliosis, was scheduled to have spinal fusion surgery on the visit date in question.

Dec 2020 – wind the clock forwards to Dec 2020 and unfortunately due to the pandemic, nobody knew how long it would be before such events could recommence. That said, hats off, absolute respect and gratefulness to Spurs who sent a small gift to Azeem for Christmas to let him know that his beloved club was thinking of him.

Aug 2022 – “Welcome Azeem to your club” the warm and friendly words spoken on Tues 9th Aug 2022 by the Spurs security gatehouse staff at the club’s Training Ground in Enfield (Hertfordshire) on what was a hot summer’s afternoon, to the excited Muscle Dream beneficiary Azeem and his equally excited father Imran – Azeem spent the afternoon with his father watching the First Team train and then meeting all the players afterwards – the rest as they say is history.

Imran Ali (Azeem’s father) said of his son’s experience:

“I would like to give a massive thank you for this amazing experience for my dear son, Azeem who is a very special kid now growing into adulthood. Azeem is a very happy and bright boy who has a very complex muscle dystrophy condition which prevents him from physically being able.

Azeem has been a lifelong Spurs fan alongside me – we have been going for many years and are season ticket holders which makes my son extremely happy especially when we see those winning smiles. His happiness is very precious to us as a family”

Imran Ali (Azeem’s father) goes on to say:

“The news of being able to see the players train and meet and greet them was a very emotional moment that I will never forget for the rest of my life.

Having seen Azeem’s face whilst the news of going to see the players was incredible – his positive happiness is very infectious, and it brings lots joy to our family. Big thank you to the Muscle Help Foundation and to dear Michael (and those others) for arranging this for my son.

A Day of Emotions – we kept this experience a surprise for Azeem which made it even more amazing for us on the day. We were greeted with a welcome from the security man who said “Welcome Azeem to your club”! I reflected afterwards that getting this personal greeting was so touching for me. We started the day by taking Azeem in and meeting the club’s admin team and knowing the agenda for the day. We visited the press rooms where we took pics. Azeem was asked whom his favorite player was – he mentioned Heung-Min Son & Harry Kane. The day went along with snacks and drinks which Azeem enjoyed, with much chocolate which he adores”

Imran Ali (Azeem’s father) concludes:

“We were then taken to see the facilities in the Tottenham Hotspur Training Centre and watch the training – the players came to see my son! Azeem’s astonishment when Heung-Min Son came to greet us and even quoted Azeem’s name saying “Hello Azeem, it’s great to meet you. How has your day been?” After spending some time with us, he signed autographs, took time with photos and then along came Harry Kane. Then rest of the squad followed suit which made Azeem very very happy.

These moments are priceless – the look on my beautiful son’s face was wonderful for me, his father, to see. The players were all very good – they took extra time whilst having their photos taken and chatted with us. Thank you to all the Tottenham squad for making us feel like VIP special guests.

The day was one of the best days of my life, seeing my son Azeem filled with pure joy and happiness. He has been very smiley after this event. From the bottom of our hearts, amazing. The charity has been brilliant to make this day happen. Thank you”.

When Azeem finally returned home, he found out that over the next few days, the family would be coming together over some Manjaros cuisine, Azeem’s favourite takeaway, to enjoy a fusion feast of African and Caribbean dishes, courtesy of the charity.

MHF has long understood the value of fostering a sense of belonging among the vulnerable beneficiaries and families that we are so privileged to work with. All are welcomed into the charity’s Muscle Warrior tribe, where there is a sense of community and shared understanding awaits. As we say, that’s the #powerof657.

About the Muscle Help Foundation (MHF) charity

Report reveals powerful community impact through virtual Muscle Dream interventions, that help reduce isolation

Reducing social isolation during the COVID-19 pandemic: The power of community engagement and virtual Muscle Dreams.

For children and young people affected by muscular dystrophy or allied neuromuscular conditions, it is all too easy to become socially excluded. Reducing isolation and fostering a sense of belonging has always been at the heart of our work and, as the country locked down in the face of the COVID-19 pandemic, this became more important than ever.

Last year, we were delighted to receive an award from the BBC Children in Need’s COVID Next Steps Programme, which we used to support our virtual Muscle Dream activities and vital community engagement work. We delivered the programme between January and March 2021 and are now pleased to share a report revealing the positive impact it has had on our community.

The full report is available HERE if you would like to read it in full.

The programme began with our Community Engagement Lead personally contacting over 70 vulnerable families to find out how they were coping and to offer practical support and mental health signposting. All our families also received a copy of a book called The Boy, the Mole, the Fox and the Horse, written by illustrator and author Charlie Mackesy. Featuring heartfelt conversations between four unlikely friends, this thought-provoking book offers comfort and inspiration whether you are 8 or 80. Virtual chats with our Chief Muscle Warrior were also available for struggling families, offering much-needed inspiration during difficult times.

The pandemic may have temporarily halted our in-person Muscle Dreams programme, but our #powerof657 mission prevailed. During this time, three virtual Muscle Dreams were delivered, focusing on Art, Music and Laughter, respectively. These brought joy and hope to the lives of 28 children or young people, with significant progress reported by the majority of those who took part.

Everyone knows that laughter can improve our health and well-being and we certainly saw some striking benefits following our Laughter Muscle Dream. When we asked our recipients to put a number to their feelings, average scores were only 5.9 out of 10 before the Muscle Dream began. After approximately 1.5hrsxuberant laughter, this increased to an amazing 9.3.

Our charity has long understood the value of fostering a sense of belonging among the children and young people that we work with. All our beneficiaries and their families are welcomed into our Muscle Warrior tribe, with access to our online community and social media channels. As one parent put it:

“Our child felt loved, appreciated, noticed, nurtured and part of the tribe. Our child is feeling so much more positive, and his confidence has definitely been uplifted. We so feel part of the Muscle Warrior tribe now!”

Throughout the programme, the Community Engagement Lead maintained regular contact with families, providing information and encouraging the children and young people to engage with our virtual events. This vital ongoing support was much appreciated, as described in this feedback from one of our families:

“So appreciative of the Muscle Help Foundation charity to check in on us and be thought of during this time. Everyone has been so supportive”

Restrictions have now been lifted and we have begun to take some tentative steps towards restoring our in-person programme activities. However, many of our children and young people remain vulnerable and our #powerof657 mission remains at the forefront of our work.

Michael McGrath, CEO of the Muscle Help Foundation charity said:

“As of August 2022, 426 children and young people from across the UK with different variants of muscular dystrophy have experienced the joy and magic of a Muscle Dream intervention, but there are another 231 waiting for their moment in time. Whilst the past three years have been incredibly challenging for our small charity, we’ve survived a global pandemic and currently, we’re just about surviving the economic realities and instability brought about by escalating living costs and a potential recession.

It isn’t getting any easier which is why we desperately need more support so we can keep pushing towards our 657 mission. If you’re able to fundraise for us or if you or your business would like to cover the cost of one or more future Muscle Dreams or if you want to donate, please get in touch”.

Muscle Help Foundation (MHF) – we are a small charity delivering highly personalised, transformational interventions in the UK called Muscle Dreams for children and young adults (8-28yrs) with the muscle wasting condition, Muscular Dystrophy (MD). Uplifting, joyful and often cathartic in nature, MHF’s academically validated work and impact is rooted in the idea that well executed, shared experiences can be powerfully transformative in nature.

2022 Barry O’Leary Services to Powerchair Football Award sponsored by Muscle Help Foundation charity

For the 2nd year in a row, the Muscle Help Foundation charity was very proud and delighted to sponsor the 2022 Barry O’Leary Services to Powerchair Football Award. Nominations are received through The Wheelchair Football Association and then considered by a select panel led by the Muscle Help Foundation.

After reviewing several incredibly worthy nominations in advance of the Awards Evening with Adam McEvoy, National Development Manager of The Wheelchair Football Association, our CEO Michael McGrath was left with the unenviable task of not only identifying one winner (Mark Kerrison, pictured below, holding shield – photo credit: Alexandra Johnson Photography) but also providing a specially recorded video message that included the Award winners name, announced by The WFA at their End of Season Awards Evening on Sat 25th June 2022 at Derby Football Club’s Pride Park Stadium. This was just two weeks after the televised WFA Cup Final at St George’s Park.

The event celebrated a fantastic year of Powerchair Football, including achievements from The WFA’s National League Premiership & Championship divisions, together with our countries triumphant European Powerchair Football Association (EPFA) Home Nations Cup campaign and more.

The Muscle Help Foundation charity has over many years directly supported its very own Muscle Warriors Powerchair Football Club, part of the Aspire Hub. The Barry O’Leary Services to Powerchair Football Award, was created by The WFA to recognise individuals that have contributed substantial time, expertise and dedication to help develop and grow the sport of Powerchair Football. Read more about Barry O’Leary here who was the Muscle Warriors Powerchair Football Club Manager, point-man and an inspirational pillar for many years within the Powerchair Football community.

Michael McGrath, CEO of the Muscle Help Foundation charity was moved when he read all of this year’s Award nominations. He said:

“Mark Kerrison was incredibly deserving of this prestigious award. I know that Barry O’Leary would most certainly approve. Thank you Mark for all that you do, for your selfless dedication to the sport of powerchair football and for your generosity of spirit in never ceasing to help others!”

The Muscle Help Foundation is so very proud to sponsor of this special Award and if we can, the charity will continue to look for ways to support one of the UK’s fastest-growing, most popular disability sports.”

Muscle Help Foundation (MHF) – a small charity delivering highly personalised, transformational interventions in the UK called Muscle Dreams for children and young adults (8-28yrs) with the muscle wasting condition, Muscular Dystrophy (MD). Uplifting, joyful and often cathartic in nature, MHF’s academically validated work and impact is rooted in the idea that well executed, shared experiences can be powerfully transformative in nature.

The Wheelchair Football Association (The WFA) – believes that everyone can play a part in changing lives through the power of football. Powerchair Football is a unique sport that provides opportunities for people with a high level of impairment to access the game of football. It is the only active team participation sport for people who use electric wheelchairs.

The sport is fast-paced, dynamic and very enjoyable to watch. Due to the unique nature of the Powerchair Football, it allows all ages, disabilities and both genders to compete together. Powerchair Football enables disabled people to take part in regular activity and provides them with competition – something that the majority will never have, or rarely, experienced before due to their impairment. As a result, it builds key life skills such as teamwork and communication.

Powerchair football creates a great social opportunity for players and their families as they experience the highs and lows of participating in the nation’s favourite sport. It brings strangers together, many of whom have similar stories and life experiences, creating friendships and bonds which last a lifetime.