Four Rugby Muscle Dream Programme beneficiaries will this Sat 10th Feb 2024 be heading to Twickenham Stadium, to watch ENG v WAL in the Guinness Six Nations tournament. Travelling from across the UK, the super excited rugby fanatics are looking forward to joining 82,000 other spectators in and no doubt singing Swing Low, Sweet Chariot, the tribute often sung at the home of English rugby.
Thanks to another successful RFU Charity ballot submission made by the charity in August 2023, the Muscle Help Foundation (MHF) created a bespoke programme designed to ensure that the four Muscle Warriors and their respective dads will have an utterly memorable time.
|MHF’s CEO Michael McGrath MBE said:
“We know the cost-of-living crisis is impacting many of our Muscle Warrior families, so we are pleased to be able to help with a contribution towards travel costs and subsistence at Twickenham, plus Hand Warmers with a personalised message have already been despatched! Additionally, a £50.00 allowance per beneficiary has been given so that some rugby merchandise can be bought at the England Rugby Store onsite at the stadium. We know the little touches make the whole experience unforgettable. We now just need England to perform on the pitch!”
ABOUT 2024 – THE 21st ANNIVERSARY YEAR:
2024/25 sees the charity reach a milestone, its 21st Anniversary – since 2003, it has touched the lives of 1000’s of people across the UK living with Muscular Dystrophy, from families and local communities to schools and businesses; today, its impact and reach continues to grow.
Plans for other Muscle Dream programmes in the 2024/25 period are shaping up. With the cost-of-living crisis in mind, every single penny counts, so please, if you’re able to support our cause with a donation of £10.00 or more to mark the charity’s 21st anniversary, the charity will be very grateful – thank you.
To push on with its 657 mission, MHF continues to look for new partnerships and collaborations but like many small charities, it needs support in order to continue its important work – if you can help, please get in touch and let’s have a conversation.
ABOUT MHF’S VULNERABLE BENEFICIARIES:
Duchenne Muscular Dystrophy (DMD) is the most severe form of Muscular Dystrophy (MD) – it is life-limiting affecting approximately 1 in 3,500 new-born boys. The vast majority (some 96%) of MHF’s beneficiaries are boys and young adults with DMD. On average, those aged 10-13yrs will transition into a manual wheelchair. By the time they reach 17-19yrs, breathing, cardio and diminishing arm movements are increasingly prevalent.
ABOUT MUSCULAR DYSTROPHY (MD):
Thanks to MHF’s friends at Muscular Dystrophy UK, new research reveals that approximately 110,000 people (babies, children and adults) in the UK live with muscle-wasting conditions. Muscular Dystrophy is a progressive condition that gets worse over time. It is the single biggest genetic killer of children in the world today. It robs sufferers of their mobility, their independence and finally for those with the most severe type (Duchenne Muscular Dystrophy or DMD), their lives. Although there is some excellent research going on around the world, there is still currently no known treatment.
ABOUT MHF’S UNIQUE POINTS OF DIFFERENCE:
Over the past 12-months, MHF’s tailored approach in operationalising bespoke virtual ‘person-centred’ Muscle Dream programmes continued to deliver positive outcomes for beneficiaries and families. The ‘lived experience’ of the charity’s CEO (Michael McGrath MBE) who has Muscular Dystrophy (LGMD2A) and who is the driving force of the organisations work, provides both a unique, valuable and trusting influence on those for whom MHF exists to serve.
THINK 657 – THE MORE UNUSUAL, THE BETTER!
MHF continues to raise awareness of it’s Power of 657 campaign – the charity’s mission is to deliver 657 transformational Muscle Dream interventions for children, young people and their families with Muscular Dystrophy in the UK, that’s one life-changing experience for every muscle in the human body.
We would like you to think about the number 657 – the charity is on the lookout for links to the number 657 and as such, we are keen to establish mutually beneficial collaborations ideally around 657. So, get in touch if you know of any connections or links in your world or in your work, the more unusual, the better!
Thank you for your support.