Our Trustees

Our Trustees

Trustees provide strategic leadership and direction in line with prescribed objectives. The Board represent the interests of all stakeholders acting as Ambassadors for the charity.

We are actively looking to appoint a further two or three Trustees in the 2020/21 period. Trustees owe a fiduciary duty to the beneficiaries of the charity – this is a duty of loyalty, honesty, integrity, good faith and transparency.

The role can be extremely rewarding and the opportunity to bring your skills, passion and competencies to help make even more of a difference to our impact exists.

The most effective Boards are ones which benefit from individuals from a diverse range of backgrounds, experiences and skill sets.

In attracting wider support and in establishing new and enduring lasting partnerships underpinned by common goals and shared values, we would like to hear from individuals who can:

  • Bring a senior business perspective
  • Open doors, make introductions, help identify new donors / partners
  • Bring professional skills – specifically individuals with a depth of knowledge & experience in:
    • Business / Strategy assist in MHF’s ongoing strategic development, help strengthen core capacity, advise on business partnership development leading to CSR or other support eg corporate sponsorship, philanthropic, Trust or foundation sources
    • Fundraising / Communications with good independent judgement and a strong communicator, bring knowledge and expertise to help inform the charity’s fundraising and communications strategy
    • Digital provide thought leadership on the role of digital and help build and implement the charity’s digital vision. Translate the risks and opportunities of digital for other Trustees, to enable the board as a whole to engage in an informed way. Provide strategic oversight, champion the use of digital data and draw on your networks to support us
  • Demonstrate a combination of intellect, personal presence and standing
  • Show excellent listening and communication skills
  • Be able to make a cogent, clear and compelling case on behalf of the charity
  • Evidence a strong personal commitment and empathy consistent with our values and mission
  • Be willing to act as advocates in promoting our work and impact across personal networks
  • Be willing to champion our cause to the wider world

The charity is committed to providing equal opportunities for all irrespective of disability, gender, race, age, sexuality and religion. For further info, email: ceo@musclehelp.com or call (01763) 274658

Fay Sharpe, Chair of Trustees

Fay has been the charity’s Chair of Trustees since 2013. A founder shareholder of Zibrant (acquired by BCD M&E in 2016) and now VP BCD M&E one of the largest Global MICE agencies, Fay has over 30 years’ experience working in hotels, hospitality, event management and the venue sourcing arena.

A strategist with strong brand, marketing, comms, culture and engagement skills, Fay is an advocate for women and also a CSR champion. Awards include M&IT Personality of the Year 2018, Mentor of the Year (Shine Awards), Hot 50 Event Legend and Lloyds TSB CBI’s First Women of Tourism & Leisure Award.

In 2015 Fay launched the Fast Forward 15 Women’s mentoring initiative. Programme members include corporate, agency, government and regulatory bodies. Fay was awarded the 2018 Mentor of the Year and an Honorary Doctorate for her services to the sector from UWL. A passionate supporter and fundraiser of various causes close to her heart, Fay is always up for a challenge!


Matthew Adams, Charity Treasurer & Trustee

New to the role of Charity Treasurer, Matthew joined the charity’s Board in early January 2020. He is keen to devote his financial skills and time to help the charity thrive and achieve its vision of delivering 657 Muscle Dreams.

Matthew is a Business Analyst at Hollister Incorporated, where he uses his analytical skills to help the management with budget setting, strategic planning and performance management. He has a bachelor’s degree in Mathematics from Keele University and is currently in the process of completing his ACCA certification.

Matthew has had links to the charity since its inception. He is excited for the opportunity to get involved with the governance and strategic direction of the charity and to use his financial skills to help wherever he can.


Sue McGrath, Trustee & Charity Secretary

Sue has been the charity’s official secretary since its inception in 2003; she is also a Trustee. She is a dedicated, tireless and passionate supporter of the charity’s work.


Providing a crucial role working alongside the CEO across a multitude of projects and initiatives linked to the charity’s Muscle Dream activities, Sue also works with MHF’s Treasurer in overseeing the day-to-day financials, in addition to ensuring robust governance and any resourcing requirements are met.


Married to MHF’s founder and CEO Michael McGrath, Sue has a unique and invaluable perspective in deeply understanding the adversities faced by families living with muscular dystrophy.


Shalon Spencer, Trustee

Shalon is an experienced international finance and commercial lawyer, specialising in the renewable and green market. She is currently Head of Legal at fund manager Octopus Renewables, managing more than £3 billion of assets globally, including large swathes of onshore wind and solar capacity across Europe and Australia. Previous to this, she spent twelve years at Linklaters LLP, a multinational law firm headquartered in London and a member of the Magic Circle of elite British law firms.

Shalon has both UK and international expertise in the legal and financial sectors. She has a particular interest in the renewable and green energy market. She regularly advises on and manages large scale and innovative projects, both leading and collaborating with diverse teams and developing strong client relationships.

By joining the charity’s Trustee Board, Shalon is not only excited about expanding her own personal development in being able to broaden her existing skill set in a very different environment whilst acquiring new skills but also adding value to a small charity. Shalon’s strengths include strong analytical skills and legal knowledge. As well as being a team player, her commitment to equality and diversity, disability awareness and human resources are valuable assets.

Shalon lost her then older brother to Duchenne Muscular Dystrophy (DMD). As a result, her insights are drawn from personal family experiences combined with her passion and energy to support a cause that’s close to her heart.


Lloyd Stephenson, Trustee

Lloyd Stephenson joined the HR team at Ashurst LLP in January 2017 to manage all recruitment and resourcing globally from London. His previous role was at Barclays, where he ran resourcing across four continents and designed the succession planning and executive resourcing strategies. He holds a Bachelors in Economics and Econometrics from Manchester University together with a Masters in Organisational Behaviour from Birkbeck College, University of London.

Lloyd heard about the Trustee opportunity via Frazer Jones, a leading global HR recruitment firm via a new Volunteer Network forum called ‘Team Up’ designed to connect charities and HR professionals. Lloyd had been looking for some time for a Trustee role where he could bring his expertise in helping to support and make a difference to a small charity. Having a close family friend with a rare form of muscular dystrophy, Lloyd was touched by the family values and work of MHF.

Click here to read an interview published by Frazer Jones with Lloyd and our CEO Michael McGrath discussing the benefits of volunteering, their experience and its lasting benefit on career development.


Michael Rudman, Trustee

Michael Rudman has extensive experience in sales, marketing and commercial development specifically within the banking, insurance and health sectors. He currently works for Simplyhealth as their Commercial Director. Both Michael and his daughter have Bethlem Myopathy, classified as a rare type of muscular dystrophy.

Michael learned about the work of The Muscle Help Foundation through the Trustee Leadership Programme he attended sponsored by Close Brothers Group and delivered by Cause4, a social enterprise and B-Corporation that champions disruptive philanthropy and new ways of scaling up charities and social enterprises. Cause 4’s Trustee Leadership Programme Alumni Newsletter (Feb ’19) featured his appointment here in which he shares his insights about becoming a Trustee.

Michael is looking forward to making an impact by bringing his diverse talents, skills and commercial business experience to the charity’s Trustee Board.


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