Trustees for Multi Award-Winning UK Charity

Posted on July 1st, 2022


About the Organisation

2022/23 is a pivotal time in the Muscle Help Foundation (MHF) charity’s development, having just celebrated its 18th Anniversary year in 2021. We’re seeking three (3) new Trustees to join our Board. Deadline for applications: 29 August 2022.

MHF is a small multi-award winning, family-centred charity, now delivering virtual experiences in the UK as a direct consequence of COVID-19. These interventions are called Muscle Dreams and they are designed for children & young people (8-28yrs) with the muscle wasting disease, Muscular Dystrophy (MD).

MHF’s growing impact is being felt by beneficiaries and their families across the UK – from improved confidence, greater self-esteem, and an increased sense of hopefulness to a powerful shared identity that connects families, giving a platform to share knowledge, memories and establish lasting friendships.


Three exciting opportunities to bring your skills, talents, energy and experience in making a vital difference to the lives of vulnerable children and young people (8-28yrs) with Muscular Dystrophy.

Reach out if you have knowledge and experience of:

ROLE 1: People/HR/Governance/Policy Management

ROLE 2: Fundraising – income generation, corporate partnerships, major donor attraction

ROLE 3: Digital Marketing

We are looking for Trustees who have a passion to take the charity forward, to grow impact, to leave a personal legacy and to feel the sense of personal fulfilment from the time they volunteer.

Being an impactful trustee requires more than understanding the role description; and in today’s new world, ensuring compliance is essential but not enough.

As a Trustee, you will

  • Have an opportunity to help improve the lives of children, young people and their families
  • Contribute to the governance of our small national charity
  • Have strategic responsibility for a specific skill area
  • Act as an advocate/champion in promoting our work across your network
  • Receive induction, support and training
  • Have an opportunity to bring your lived experience, in using (and further developing) your skills for the benefit of others
  • Be a part of the team that will help the charity achieve its overarching 657 Muscle Dream mission

Requirements + KEY CRITERIA

Our key criteria are that you have a commitment to the charity’s values and enthusiasm, an understanding and passion for our work, great communication skills and a real desire to make a difference to the lives of our beneficiary community.

You may have close experience of living with muscular dystrophy, other disabilities or life limiting conditions, but this is not essential.


The expected time commitment is approximately 10hrs hours per month, to include taking part in Trustee Power Hours (generally once a month) and Trustee Board meetings (once every three months) and being involved in occasional projects – MHF Trustees ‘own’ a ‘bucket’, in other words, an area of responsibility like ‘HR’ or ‘Finance’ or ‘Safeguarding’ that allows an individual to bring their skills, experience and talents to the charity. Reasonable expenses will be covered.

What are we looking for – PERSON SPECIFICATION

  • An excellent communicator with listening, responding and interpersonal skills, able to both empower and challenge supportively.
  • A strong commitment to equality, and an understanding of disability and how for example this may impact on the quality of life and life choices for disabled people and their families.
  • You may have close experience of living with muscular dystrophy, other disabilities or life limiting conditions.
  • Commitment and time to dedicate to the role and responsibilities of being a Trustee.
  • Commitment to the charity’s vision, mission and values and a desire to make a difference to the lives of our vulnerable beneficiary community.
  • Understanding of the context in which the Muscle Help Foundation works, its values, and the importance of ensuring public confidence and trust in the charity.
  • Previous experience of working collaboratively as part of a team, using sound independent judgement and collective decision making.
  • The capacity to grasp issues outside personal experience and the ability to contribute to high level strategy development.
  • The ability to think creatively and strategically.
  • Commitment to equality and diversity in working relationships with other trustees, staff, beneficiaries and other stakeholders.
  • Professional or relevant experience and knowledge and/or the ability to demonstrate the necessary skills needed to support the charity’s interests.

What difference will you make?

The role of an MHF Trustee is to provide strategic leadership in line with the organisation’s objectives. Trustees will use their knowledge, skills, passion and experience to ensure that the charity achieves its objectives – as a Trustee, you will represent the interests of all stakeholders and act as an ambassador.

This is a hugely important role that will help ensure that the charity can continue its support for its vulnerable community, namely children and young people (8-28yrs) with muscular dystrophy in the UK.


As an MHF Trustee, this is an amazing opportunity to bring your unique skill set to help the strategic progression of the charity in reaching its overarching goal to deliver 657 Muscle Dream interventions, that’s one cherished moment-in-time that changes lives and gives hope, that’s one experience for every muscle in the human body.


  • You will have an opportunity to help improve the lives of children, young people and their families
  • Be part of an incredible team all rowing in the same direction
  • Contribute to the governance of a small, multi award-winning national charity
  • Have your voice heard and listened to
  • An opportunity to work closely with one of Britain’s most influential people with a disability (aka our CEO & Chief Muscle Warrior)
  • Attend events, meet beneficiaries & families and by default, witness the impact of the charity’s work
  • Plus have strategic responsibility for a skill area such as: HR & governance, fundraising (income generaton), corporate partnerships or digital
  • Network with other like-minded individuals with common values
  • Receive induction, support and training
  • And much more…


You will act as an advocate in promoting and championing MHF’s work across your network wherever possible, so others can learn about our work and impact, with a view to supporting the charity in some way. Of course, if you have transferable skills which you feel would be beneficial to the success of our small family-centred charity, we would also love to hear from you.


If you are interested in learning more about any of these Trustee opportunities or maybe you wish to have an informal conversation first before applying for any of the aforementioned roles, that’s absolutely fine.

Should you wish to apply, please email making sure you put < Trustee Application > in the email subject line. Please write a short cover letter in the main email (1-2 paragraphs), attach your CV and answer the following questions:

Q: Why you are interested in being a charity Trustee?
Q: Tell us what difference you believe you may be able to make?
Q: How do your skills and experience could benefit the charity?
Q: Do you have any direct or indirect experience of disability?

The more information you can give the better in outlining your skills, talents and abilities. All applications will be acknowledged within 48hrs.

The charity welcomes applications from individuals of all backgrounds, and we will also welcome those who perhaps do not have experience of trusteeship to consider applying.

Thank you for showing an interest in being a Trustee.

We look forward to hearing from you.

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