Trustees – The Muscle Help Foundation

Posted on January 22nd, 2020

OPPORTUNITY REF: Trustees/22.01.21/V1/MHF

The Charity    

The Muscle Help Foundation (MHF) is a small, multi-award winning family-centred charity that delivers transformational, highly personalised experiences in the UK called Muscle Dreams for children and young people (8-28yrs) with muscular dystrophy and allied neuromuscular conditions.


Do you share our passion for providing empowering, transformational experiences to children and young people (8-28yrs) with muscular dystrophy and allied neuro-muscular conditions in the UK?

The Muscle Help Foundation are seeking committed individuals, with an interest in improving the lives of children and young people with disabilities (specifically those with muscular dystrophy), to join our Board of Trustees.

We are looking to appoint two to three Trustees to join our Trustee Board from March 2021 onwards. Trustees are responsible for the overall governance and strategic direction of the charity, working with the CEO to develop our aims, objectives and goals in accordance with our governing document, legal and regulatory guidelines.

You will have a strong personal commitment to the charity’s vision and values. Whether you are an experienced Trustee or taking your first step as a Trustee, we would love to hear from you. Being a Trustee will give you the opportunity to use your skills, passion and commitment to help shape the future of our charity and to improve the lives of vulnerable people.

This year, 2021, sees the charity reach its 18th Anniversary in March; a key milestone – this is an opportunity to bring your skills, talents, and experience in making an important difference in a role that we hope you will find immensely fulfilling.

As a Trustee, you will:

– Have an opportunity to help improve the lives of children, young people and their families

– Contribute to the governance of our small national charity

– Have strategic responsibility for a skill area e.g. digital, safeguarding, fundraising or corporate partnerships

– Act as advocates in promoting our work across your network

– Receive induction, support and training

– Have an opportunity to use and develop your skills


You may have close experience of living with muscular dystrophy, other disabilities or life limiting conditions, but this is desirable and not essential.

Our key criteria are that you have a commitment to the charity’s values and enthusiasm, an understanding and passion for our work, and a desire to make a difference to the lives of our beneficiary community. We would also particularly welcome applications from individuals with skills and experience in digital, fundraising and corporate partnerships although other skill sets that will contribute to the good governance are most welcome too.

The expected time commitment is approximately 4-6 hours per month, to include taking part in Trustee Board meetings and being involved in occasional projects.

As a direct consequence of the pandemic, the Board of Trustees are currently meeting virtually by videoconference for a ‘power hour’ each month, and for two hours each quarter. Usually, Trustee Board meetings are held quarterly in and around London for three hours; we expect to continue the practice of virtual meeting which will be reviewed over the coming 12 months – this may change in the future, depending on the needs of the charity and our Trustee Board.

About the Muscle Help Foundation:

We are the Muscle Help Foundation, an award-winning specialist national family-centred charity that delivers transformational, highly personalised, empowering experiences in the UK, called Muscle Dreams for children and young people (8-28yrs) with muscular dystrophy and allied neuromuscular conditions. Our social currency is underpinned by the idea that an experience, if executed brilliantly, can be transformative and empowering for both a young person and their family.

As a result of COVID-19, MHF took the extremely difficult decision to postpone our planned 2020 Muscle Dream activities in March 2020. We remain resolute and determined to continue our vital work into 2021 until our beneficiaries and families are able to re-engage in face-to-face activities. We are currently engaging with our community across the country and reducing our Muscle Dream wait-list in addition to offering other virtual programmes wherever possible.

The Muscle Help Foundation is an Equal Opportunities employer. We are seeking applications from individuals with a diversity of experience and perspectives, including age, ethnicity, religion, sexual orientation, and socio-economic and cultural background.

The charity is committed to safeguarding and promoting the welfare of vulnerable young adults and children at risk; we expect you to share this commitment. The charity will require an Enhanced Disclosure from the Disclosure and Barring Services for successful candidates; the charity will manage this process.

Location: Anywhere in the UK

Duration: Three year term, up to a maximum of three terms

Salary: This is a voluntary role, with out-of-pocket expenses paid

Closing date: Monday 15th February 2021 but please apply as soon as possible as we may close applications before this date.

Strictly no agencies please.

For further info and to apply: CLICK HERE

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