“The Hotel Brooklyn, which is situated right in the centre of Manchester, was selected as the group’s base for the weekend. It’s a relatively new hotel and although it’s fully equipped to meet the needs of disabled patrons, it’s designed not to appear too clinical, with many clever, yet hidden adaptations. All the rooms were large, with space under the beds for mobile hoists. In addition, there were two rooms with ceiling track hoists that accommodated the two young men who attended. It was a truly fantastic hotel and was staffed by an amazing team for whom nothing was too much trouble.

Saturday morning began with typical Mancunian weather, but despite the rain, many of the group set off for a tour of the Etihad Stadium. The boys were very excited about this and, although our trip was somewhat hindered by the fact it was a match day, it was overall a very successful visit.

Later that day, the boys took part in a gaming party fuelled by a large supply of Haribo. Unsurprisingly this was a huge success and very popular with the children. The parents were also impressed with how quickly and easily the boys put the equipment down when asked to, not something that typically happens at home!

Saturday concluded with an anniversary dinner. A member of the Duchenne Family Support Group (DFSG) gave a short talk and reminisced about the history of the group and how it had grown since its early days. This was followed by a 1987 themed quiz, with drinks and chat continuing long into the evening.

Over the past 35 years, the Duchenne Family Support Group (DFSG) has played a vital role in improving the lives of families affected by Duchenne Muscular Dystrophy (DMD). Weekends away, such as this one, are crucial in helping families make new friends, including future support for the parents, new gaming buddies for the boys, and new friends for the siblings”.

“When I heard that DFSG were celebrating their 35th anniversary in Manchester, I knew that if there was an opportunity to contribute in some small way for the benefit of the children, young adults, their families and carers attending, then MHF would do so – as a small family-centred charity, we were really delighted to provide support in this way. We wish our friends at DFSG continued success in their vitally important work in the future”.